As I See It - Part 1


As I See It - Part 1

February 19, 2014

Today we introduce a new feature for viewers of www.survivingmold. Twice a week I will present an opinion on current issues facing mold and medicine. In a few pages I hope to discuss what is going right with today’s world but I suspect there will be some discussion of what isn’t right as well.

Understanding that my opinion isn’t shared by all, I hope that a dialogue with readers will be possible. Please address comments about these essays as you would a letter to the editor by sending them to the website. Differences of opinion are welcome provided that the basis for those differences is presented. Civil conduct will be expected.

RC Shoemaker MD

 

Some questions that will be examined include the following: Can we define quality medical care? Can we share with others how to be a good biotoxin doc? Who can we trust to lead our research efforts? And what is good research anyway?

These topics are ones with many opinions. We want to explore the opinions on pertinent questions on mold and medicine on this site after weighing in with our own. We will be asking our certified physicians to share their thoughts and welcome contributions from others. Our first opinion essay focuses on diagnosis and those who make it. Let us know what you think.

Editor

Diagnosis and the diagnostician

Dr. Allan Detsky and his collaborators from the Institute of Health Policy from University of Toronto write in JAMA 2013; 310:579-80 (see link here) on the Evolution of the Master Diagnostician. He doesn’t specifically address chronic inflammatory response syndromes or any other medical condition. I don’t know Dr. Detsky; indeed have never had the pleasure of conversing with him. I just think that his views about the qualities needed in the new diagnostician are off base and as they form the basis of his opinion about medical education and are published in an esteemed medical journal, I must differ. Against his ideas of the nobility and integrity of the medical profession are the unfortunate realities of medicine in the current era of regulation of thought and practice where third party opinions intrude into science and bias regularly seeps in from the administrative, financial and commercial sewers.

He discusses three prototypes of excellent clinicians, one each from past, present and future. His Conclusions are unobjectionable as far as they go. It is the things he leaves out that concern me. I acknowledge that perhaps I have become too cynical about the process of health care delivery for those with CIRS. I just don’t see much nobility in provision of health care any more.

Dr. Detsky frames his viewpoint around three basic questions he thinks patients ask. What is wrong with me? What treatment will help me? Will I recover? While I agree, I think these questions are just a start in what is important to those with chronic, fatiguing illnesses.

I note he did not include a few other questions that patients pose these days, including: “Did I receive quality health care in today’s visit/hospitalization? Did the doc listen to me? Did the doc care about me as a person?”

I submit that the Master Diagnostician needs to know these answers as well. They reach beyond an aspiration to be a master diagnostician – indeed they involve the journey to becoming a physician in the holistic sense in which a well patient is the sole goal.

According to Dr. Detsky and his colleague, the “past” physician has knowledge of medicine built on his wonderful recall of the literature and ongoing experience with his patients. The physician of the “present” has limited follow-up, but functions well in hospitalist setting, having helped distraught families for years with her communication skills and helping her colleagues with her PubMed-based knowledge of illnesses. The ace doc of the “future” also is experienced. He uses the electronic health record and checklists to help him in his search for probabilities of immediate answers to complex presenting problems.

Dr. Detsky suggests that all physicians need to receive inputs regarding their judgment, seeking external systems to help them avoid errors of thinking and analysis, though who provides those inputs is not clear. Further, ongoing review of diagnoses made and the outcome of those diagnoses is needed. He argues that checklists for docs, much like those used by airline pilots, will be helpful to avoid pitfalls. His goal of physician education is to build upon the skills that come from the physicians of the past and present so as to integrate those skills into the physician of the future. Ideas like “be thorough,” and “always listen to the patient,” are regarded as platitudes (emphasis added) compared to (i) centrality of knowledge; (ii) know your limits; (iii) feedback and (iv) offloading.

I found his analysis interesting but what Dr. Detsky fails to review is that each of these exemplar physicians would also be subject to the crossfire and other conflicts that plague biotoxin victims and CIRS patients trying to access quality medical care that is also informed, compassionate and experienced. Simply having experienced docs does not translate into experience with an illness whose very essence from immunology is only recently unveiled.

I note that the number one complaint from patients about docs who don’t “get it” about CIRS and other potential diagnoses that are often treated contemptuously by some, is that the doc wasn’t thorough and didn’t listen. Platitudes? I see a major argument here. How can a patient be irrelevant to unveiling his diagnosis?

Moving on: Again with reference to a community setting, I would have liked Dr. Detsky to acknowledge the reality that diagnosis too often suffers from personal and institutional bias. Not to mention commercial bias! A major omission in my view. He could have talked about the bias that comes from the esteemed doc of the past who tolerated no guff from the whippersnapper who figuratively said that lab coats needed to be cleaned and hands washed. Harrumph indeed. And the implication for me has been that so often I see the attitudes of docs who leap to unfounded psychiatric diagnoses when they have no clue about CIRS. “If I haven’t seen it or heard of it, it doesn’t exist.” That is not a master diagnostician.

Did Dr. Detsky talk about the anecdotal dominion of the in-hospital practitioner who was bound by the institutional bias of the large academic conglomerate? Just read fifty records of mold patients seen at the big name hospitals if you don’t think such bias exists. I sure have. Without naming institutions, what I have seen from various mega-medicine sites over the years can be summed as a monolith of intentional denial. Finally, when we reduce medicine to pre-existing checklists from the futurist it is time to turn in our stethoscopes.

Today I spoke with one of the CIRS-certified physicians. I told her to be sure to keep some sort of file of reminders that listed patients that had odd findings. For years, mine was a Zip-Loc bag with sticky notes and memos pages inside (Editor: this quaint system is typical of medicine in the pre-computer era). Look at the file from time to time. Her patients with odd findings weren’t on my teaching checklists but her ability to notice something new and collate those “oddballs” will take her far beyond what is published or known today. Yes, always challenge today’s hypotheses tomorrow but treasure data that don’t fit a model even more than data that does. Such notice of the unusual aspects of medicine are the fermentation vats that brew new insights that in turn help chronically affected patients access treatments that aren’t yet in a university-based computer. This is definitely not check-list territory.

She will be a truly Master Diagnostician as she integrates academic rigor with patient advocacy and with a never ending curiosity to learn more about what isn’t on some computerized checklist.

Euclid told us that without assumptions, there can be no proof. If the assumption I am provided accepts that 1+1=3, I guarantee you that I can prove anything. So it is with Dr. Detsky’s New Modern Masters. They make so many assumptions that they fail in complex cases. Always examine assumptions, whether they are the weather forecast or the conditions needed to be a Master Diagnostician. Trust data, don’t trust assumptions! If the correct data don’t fit the model, the model is wrong.

Where does patient-driven research fit in Dr. Detsky’s model for future education? Or can we separate Diagnosis from Research since it is research that tells us that what we thought we knew was true actually wasn’t.

Sherlock Holmes was created by Scottish author and physician Sir Arthur Conan Doyle, a graduate of the University of Edinburgh Medical School. The last time I read The Hound of the Baskervilles, Sherlock didn’t use a checklist but was an astute observer of all that his senses told him, and the facts were then subjected to stringent analysis based on knowledge. Prejudice was not a factor.

The second half of this discussion features a real case, diagnosed really wrong by really great medical institutions that are really arrogant to refuse to own up to their mistakes.


Comments

  • Rebecca
    - Mar 12, 2014
    Yes, I agree with you Dr. Shoemaker, there is more to being a Diagnostician than just asking a couple of questions and using a checklist. I do agree though, that a checklist is helpful in the initial visit to begin a dialogue with a patient. It takes time, patience and energy to connect the dots and find out what truly is going on with a patient. As you know, each patient is a unique individual with their own story. Especially the CIRS patient who have had one problem after another before finally receiving the diagnosis of CIRS. This was my case. I was treated for a variety of medical problems. Each one was treated as a separate medical issue. No one ever tried to connect the dots. The following is an example for Doctors of what not to do: I received the results of my lab work last Feb. 2013; the Doctor told me the tests indicated I have a medical condition called Mold Illness. He then stood up to indicate we were done with the time allotted. As we walked out, he told me to go to Surviving Mold.com, read a book: Surviving Mold and take a VCS test. Remember, I am ill, my brain is on vacation. I was like a deer in the headlights. Trying to be a good patient I went to the website, read a few things, ordered the book and eventually took the VCS test. I had a hard time reading the book because I have difficulty reading with meaning and I get overwhelmed easily and need to take breaks from what I'm reading. I asked my Doctor if he planned on getting certified to treat Mold patients and he said no. He went to a Conference and learned enough about it that he was confident he knew how to provide the right treatment. He referred me to a Homeopathic Doctor in his office. I've been given Homeopathic "mold pellets" to take along with the CSM and BEG spray.(Hello! I don't have a mold allergy!) I joked to the Dr. that Dr. Shoemaker says not to get creative- stick with the protocol and you'll get results-(No comment given by Doc.) As of this writing the Doctor has referred me to another Doctor in his practice because he is not longer going to accept any other insurance except Medicare. So this new Doctor has not provided any plan on what we are doing. Please don't keep your patients out of the loop! When I go back and reread info. I find that my treatment is very different from what Dr. Shoemaker recommends. As a result, I feel frustrated, and am slowly losing any hope that I will ever get better. I am in Mich. It seems like all the competent doctors on either out East or West. I appreciate Dr. Shoemakers efforts to help Doctors get certified to treat CIRS patients properly. I'm a retired Special Ed. Teacher with a Masters Degree. Yet I'm not the same person I use to be. Writing this comment has been a difficult undertaking for me because I have difficulty expressing my thoughts. Thank you for this format. I do not blog, am not on facebook, and don't Twitter. I live with my husband, and golden retriever (SHELBY) in a small town in southeast Mich. I had big plans what I was going to do in retirement. CIRS has definitely complicated things! Again, if there is a Doctor sitting on the fence whether or not to get certified- PLEASE! don't think, just do it! It involves some of your time, but you'll be helping a large group of people in need. Thank you! Rebecca Ross
  • Patricia
    - Feb 25, 2014
    I thought the article — The Evolution of the Master Diagnostician — was interesting, if a bit shallow. The article Dr. Sheomaker refers to listed a few things a “Master Diagnostician” should be, and he has all of ‘em, plus many more not listed. He is always adding to an extensive database; he has encyclopedic knowledge, with a knack for speaking about uncommon conditions, usually extemporaneously, without need to reference a text; he has extensive experience; he is a tireless advocate for CIRS patients. He always subjects facts to stringent analysis, and he only trusts data that has been through the important gauntlet that is his very educated mind. His never-ending curiosity and the fact that he reaches out often for more knowledge about an ever-expanding array of subjects means that in another life, he would’ve made a fabulous journalist. He is fiercely intelligent and courageous enough to have won 45 Frye/Daubert legal cases regarding CIRS (only 9 losses). In an age where so many arrogant physicians believe that they know everything, and if they don’t know it, it must mean that it doesn’t exist, he is different. He dared to question the status quo, gathered data to prove an emerging illness existed, developed an empirically supported diagnostic and treatment protocol, published his data, and continues to train others and spread the word about mold illness. That’s an astonishingly impressive list for one lifetime, and he’s still adding to that list every day.
  • Faith
    - Feb 24, 2014
    I have a husband, two children in college, other family and a dental practice of 25 yrs of patients and 7 employees depending on me. I need to get well asap. Faith Bolam, DDS
  • Faith
    - Feb 24, 2014
    Could Dr. Shoemaker see me today or tomorrow? I have been to many doctors and specialists to help me with my symptoms that are associated with mold sickness. I still feel sick. My recent pneumonia has caused me to believe I was dying. Your protocol has given me some hope. I want to live! Thank you for your time and response asap. Email reply is fine. My cell is 619-887-7828.

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