My Name Is Erik Johnson
My name is Erik Johnson. I'm a survivor of the 1985 Lake Tahoe "mystery Illness" and here is how I got involved in the creation of the new syndrome called CFS.
Dr. Cheney called me into his office, "How would you like to be a prototype for a syndrome?"
It didn't take more than a moment's reflection to say no. I didn't think this was a good idea. I told Dr. Cheney that thanks to mold avoidance, including creating a mold free camper as a refuge, I had already improved to the point that I was no longer a good representative of the unexplained illness.
But there was something else that stopped me. I was a Cheney patient in Fall of 1984, from before the mysterious flu had struck town, and I knew that this flu-like illness was what the CDC had been called for. I didn't want to complicate matters by tossing in my prior mold complaints.
I told Dr. Cheney to get someone else, there must be many people who would serve better, and I didn't think it would be ethical of me to act as a representative for the Raggedy Ann syndrome, knowing I had something other than what they wished to study.
Featured Resources for Community
2023 CIRSx ANNUAL CONFERENCE Friday - Sunday | July 14 - 16, 2023 Boulder, CO
Providing science-based training, education, and awareness to environmental and medical professionals treating Chronic Inflammatory Response Syndrome (CIRS) patients.
CIRS Spring Cleaning Checklist
Living with CIRS means cleaning and maintenance efforts must be ongoing and up to CIRS-safe standards. Spring is a perfect time to do a thorough examination and cleaning of the entire home and create a schedule for the year ahead.
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Dr Pinkston jumps into the holistic and contemporary health, wellness, anti- aging scene with a dose of motivational and inspirational guidance to bring her listeners to experience The Better Life.
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Joint Surviving Mold | CIRSx Web Conference Broadcasting Live from Salisbury, Maryland October 14, 2022 9:30AM- 5:30 PM EDT
Healing connections: Doctors who embrace their practice with the soul of a poet.
The following article pulls a few excerpts from a piece by one of Dr. Shoemaker’s patients, Shaler McClure Wright. The piece appeared as an episode in a series titled, “Soul Chronicles for the Chronically Ill” on healthstorycollaborative.org